Barth syndrome

Barth syndrome
Other names3-Methylglutaconic aciduria type II, X-linked cardioskeletal myopathy and neutropenia, cardioskeletal myopathy with neutropenia and abnormal mitochondria, cardioskeletal myopathy-neutropenia syndrome
Cardiolipin
SpecialtyEndocrinology 
SymptomsDilated cardiomyopathy, neutropenia, short stature, muscle weakness
ComplicationsHeart failure, delayed motor skills, infections
OnsetInfancy
CausesGenetic mutation
PrognosisReduced life expectancy
Frequency1–9 per 1,000,000

Barth syndrome (BTHS) is an ultra-rare, but serious X-linked genetic disorder, caused by pathogenic variants in the TAFAZZIN gene, which leads to an inborn error of lipid metabolism. It may affect multiple body systems (though mainly characterized by pronounced pediatric-onset cardiomyopathy), and is potentially fatal. The syndrome is diagnosed almost exclusively in males.